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comment by katakowsj
katakowsj  ·  524 days ago  ·  link  ·    ·  parent  ·  post: My mom might die  ·  

Shit. That situation sucks. That's all there is to say. I'm in the waiting room for radiation oncology at Henry Ford Hospital ,Detroit. I''m getting Radiation treatment 3of4 for arecurrent glioma. Been surviving it for over ten years now. No cure for gliomas either. We've been managing this shit for over ten years now. Not all of ithas been terrible eitherthough. I'v e had some amazing times with my kids

and family. Times that are farmore amazing as I didn't think knewthey were guaranteed. I heard a hopeful statement about situations like ours. "It doesn't always get worse."

It's true.

I No one's disease is the exact same. Only by keeping fears at bay can we get our best result. I hope you guys find yourselves feeling better soon. I also work hard to live by ," It's rarely as bad as you think it will be and rarely as good as you think. Lastly, I've learned to recognize and discard related fearful thoughts that pop into my head. Listening to your random fears will drive a person to make terrible decisions.

Also , sorry as my typing is shit. My last two surgeries f-ed up my left field of vision. navigating a keyboard by sight is super tough.





tacocat  ·  524 days ago  ·  link  ·  

You always know they're going to die. Then it hits

And somehow you have grandparents who hang on forever out of spite and hatred

lil  ·  522 days ago  ·  link  ·  

It’s the hardest - losing a parent.

katakowsj  ·  523 days ago  ·  link  ·  

I 'm afraid I'll need some more spite and hatred soon Thank you Donald Trump, you fuckwit.

bhrgunatha  ·  524 days ago  ·  link  ·  

Hope the treatment is helpful in your struggles.

    I've learned to recognize and discard related fearful thoughts that pop into my head. Listening to your random fears will drive a person to make terrible decisions.

not just bad decisions, when you focus on something it just grows and bad habits like that are so easy to pick up.

After the radiation, how does it affect you? And how long 'til you recover fro that?

katakowsj  ·  523 days ago  ·  link  ·  

Thanks for asking. I'm more tired than usual after radiation. I did run 3miles last night. It was 60 degrees F in Michigan. last night. Couldn't pass that up.

I've notiiced my left field of vision is shittier. My w and I went shopping for the week tonight. I'm having more trouble walking in public places. People that cut in front of me from my left aren't noticed immediately and I'm likely to bump ibto them. That makes me fell like an idiot. I aplogized to a shopping cart I didn't see today. thinking it was a personat the time. Fucking annoying to me.