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comment by katakowsj
katakowsj  ·  255 days ago  ·  link  ·    ·  parent  ·  post: My Brain Tumour, Something’s Leaking?

Lil, you may want, at some point, to reach out to the Hermelin Brain Tumor center at Henry Ford Hospital in Detroit. I’m a month and three days away from celebrating a year without a brain surgery. I’ve had two. The first on 4/19/2012 and the last on 1/8/2021. Pushed to pick a favorite, I’ll go with number two. Number Two being a stereotactic ablation and needle biopsy of cancerous brain cells. I was home the day after and having minimal physical pain. Surgery number one was craniotomy, right side of my skull cut away and tumor cells were suctioned out physically, rather than heated up and destroyed. This surgery was terribly painful and I made good use of my morphine drip.

I’d you can, please research out to my most recent surgeon, Dr Ian Lee at Henry Ford Hospital. I’ve experienced that stereotactic ablation surgery is much safer and precise. Turns out that physically removing diseased cells has a dramatically higher likelihood of damaging nearby capillaries and causing patient stroke. In ablative surgeries, blood in capillaries acts as a heat sink, sparing the capillaries themselves from damage, reducing chance of stroke. This then allows for surgeries that otherwise would be deemed too risky.

To feel fully recovered took months this last time, but with patience, some physical therapy and support of loved ones I’m feeling great.

Please keep us Hubskiers updated.

Thoughts, prayers and well wishes to you daily. :)

lil  ·  255 days ago  ·  link  ·  

I didn’t realize that you’d been through so much. I know a little bit about the mk family - quite a few dramatic stories there.

Thanks for all the info. There are amazing doctors and amazing developments in medicine.

I am hoping (and believing and acting as though) my tumour was a benign meningioma, not malignant.

But I was resigned to not getting through this if that was the case. I may say more about that in due course. I wasn’t interested in raging against the dying of the light, I m not a fan of suffering. I felt and still feel curious at my reaction to possibly dying.

I’m aware too that you are likely in your late 30s or early 40s, with young children and mid-career, very different from me). (Yes, more to say on this. Love to hear your thoughts as well).