An update for those who care, for those who don't just block the self@ tag.
I continue to baffle medical science. I had a PA with decades of experience and a doctor with even more decades of experience tell me to my face that I don't fit any of their existing models of disease, so they can't really make any kind of prognostic statements.
My exercise tolerance is dropping.
My symptom-burden is increasing, and requiring increasing amounts of energy to stave off and manage.
Orders from each doctor continue to conflict directly. 'More water, less water, more of this drug, stay away from these...'
One positive out of today's appointment, I won't be having the transplant discussion for a while it seems. Sick, but not sick enough.