As Dr. Meymandi typed an email to the pediatrician in Kansas, I thought about the fact that this young patient had a one-in-three chance of waking up one day with a heart, a corazón, that would feel too heavy and big for her body. A heart whose walls would thin, develop scar tissue, and perhaps eventually even need to be replaced with a transplant. I thought about how startled the mother must be and wondered how much she understood about her daughter’s prognosis: Any heart failure would not come this year or next, but in ten or twenty or even thirty years.

    I thought, too, about how most people with Chagas do not have email. They are poor. They are immigrants. They don’t even know that Dr. Meymandi is here in the San Fernando Valley.

posted by ButterflyEffect: 961 days ago