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    I can't figure out if they put the sentence about the NIH in their response because he (or someone on his staff) actually read to the bit past the acronym "ALS", or if it was just in the generic email.
I don't know, but my guess is that it was a pre made letter that went out to all Ice Bucketers.

You are right about his track record though. In this regard, it seems Congressman Price is one of the good guys.