Share good ideas and conversation.   Login, Join Us, or Take a Tour!
comment by OftenBen
OftenBen  ·  4 days ago  ·  link  ·    ·  parent  ·  post: Pubski: May 16, 2018

No update of substance with regard to health. More testing has been scheduled after the treadmill stress test I took showed a drastic decrease in exercise capacity. Essentially as soon as I start moving I become anaerobic because blood isn't getting to all the bits it should. Another neck-needling cardiac procedure sometime soon, inner ear testing to check for/rule out true vertigo, a few other things.

I have a long time friend and mentor who got a heart transplant last year after almost fifty years of living with a condition almost identical to mine. Last week she found out her donors name, Brandy, and some more information about her. She left behind a sister and a teenage daughter, and they have tentatively begun to get to know one another. There is no standard model for contact between a donor family and an organ recipient, everyone seems to do things their own way, for better or worse. My friend is a strong, kind and deeply affectionate person. I hope that Brandy's family will take some comfort in knowing that their mother's, sister's passing accomplished some good, and allowed my friend to continue her work improving cardiac care across the country, across the globe.

Barring some massive development in artificial hearts in the next few years, this is the path I will be on. If you had asked me a year-ish ago if I would accept a donor organ, I would have told you no. I would have told you that there is a high demand for organs, and I have lived my life without much regret. I would have told you that someone younger than me deserved a chance at more years. I would have told you that someone older than me has obligations to dependents, and it would be unfair of me to take a heart when someone's parent might need it. I would have told you lots of things, most of it true-ish. But the real reason I didn't want one is because I truly didn't think that I was worth keeping around.

I have since been convinced otherwise.

    He who has a why to live for can bear almost any how.

In less dire news, my request to terminate my lease early because of foundation leaks/water damage was approved. We have a cute little house to move into at the end of the month, after it's had it's carpets cleaned, a few other odds and ends. For the first time in three years, I'm going to have a yard, a garden, and nobody smoking cigarettes outside my windows at all hours of the day and night.

Cheers Hubski.