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comment by OftenBen
OftenBen  ·  2763 days ago  ·  link  ·    ·  parent  ·  post: Pubski: September 28, 2016

Had my right heart catheter procedure performed yesterday. The procedure itself went fine, the results are bad. I have diastolic heart failure.

The doctors first thought is to treat the massive fluid overload and pressure issues I've got with drugs. Because I'm in early stages, and have a more in-depth understanding of what blood chemistry metrics they want to control than most, I think I can manage with diet alone, for at least a little while. I'm meeting with the nutritionist next week to put a tighter set of reins on my food restrictions, and I'm basically giving up alcohol.

There is no real 'treatment' only management. There is no cure except a transplant, and as long as I'm able to hold down a job of some kind, complete basic ADLs (Activities of Daily Living), I won't be listed for one. And I don't want one besides. I'll hold out for a 3d printed one or a re-cellularized ghost organ.

I don't know what else to say really. I took today and tomorrow off work even though by now I'm mostly recovered from the catheter. I'm not recovered from the additional diagnosis. I knew this day was coming for a long time, and now that it's here it's both under and overwhelming. Overwhelming in the sense that I have a lot of work to do. Underwhelming in the sense that it was a day like any other. There was some rain, I had fish tacos for lunch, went to bed after a mug of tea kinda like usual.

I'm going to do my best. To eat right, drink the right amount. Take the pills I'm supposed to even if they scare me.

I don't think I have any other option.





user-inactivated  ·  2762 days ago  ·  link  ·  

Man, that sucks. At least you have a cause, a path to better health and an action plan.

Remember: you die on us and I'll kill you :)

lil  ·  2762 days ago  ·  link  ·  

Your post: :-(

Your spirit: :-o

My atheistic heart will pray to the great oneness that we are all part of for success of your maintenance plan, freedom from the despair of hopelessness, and yummy fish tacos.

It rained here too, and rained, and rained.

steve  ·  2763 days ago  ·  link  ·  

    I have diastolic heart failure.

shit.

    a re-cellularized ghost organ.

I know a guy who will harvest your stem cells to possibly be used for that re-cellularize that ghost organ.

    I'm going to do my best.

That's a crap hand you've been played. Keep playing it as well as you can.

OftenBen  ·  2763 days ago  ·  link  ·  

    shit.

My sentiments exactly.