Wow. You don't see that everyday. If you don't mind me asking, how's your daily life affected by such a condition?
Standing and sitting is really uncomfortable, and it's not visible on me other than the fact that I have more scars then the average 17 year old. (And more stretchmarks) so I try to stretch and move as much as I can, or sit with pillows behin my back to stabilize it. I have a special matress, guards for my forearms to stabilize them during the night, I eat an NSAID (basically ibroprophen, but stronger, to save my stomach) when my body decides to inflame everything. I eat an medicine to lessen production of stomach acid to not get stomach problems from eating an NSAID, I take an kortison nose-spray to not get a sore throat when my sinuses also inflame. I basically can't sit still. Which isn't a huge problem. I missed a ton of school but I am going to a normal class with my teachers knowing that if I walk out for a bit, or kinda fold myself over it's not because I'm obnoxious it's 'cause my joints hurt. But also, I am very durable. I have never broken a bone and I was/am one of those kids that climb everything, do catwheels, back handsprings, etc in the back yard. I was a really active kid and I'm still quite active - especially in summers. I don't have to be careful with myself at all, except when it comes to standing around or sitting for long periods of time.
Running would be horrible. Running is the worst thingI could do. I swim and do gymnastics, and bike. I am VERY active. I bike like 10 k whenever I can and work in a daycare center.
Because it's repetedly slamming with quite a lot of force a very vulnerable part of my body in to the ground. It HURTS. I don't luke it because it HURTS. People assuming because condition and because you don't like aren't the same thing annoy me a ton. I don't like it because it hurts. It doesn't matter if that is becuase of mu condition. Doing something over and over that hurts is not good. That is called self harm. I train in ways that feel good. And not in ways that make my body feel weaker. I swim, quite a lot and with quite a bit of skill. I'm currently working on my butterfly stroke and it's the best it's ever been. I am reallt fit. Me not running is irrelevant. I don't run, because for me running hurts.
Yep. I also do some gymnastics, and diving - which is low impact if you land right, and most of the action is in the air or upside down which stretches the muscles in another way.
You didn't offend me personally - I know you idn't mean anything bad by it. But people assuming I'm not well trained because I don't run really annoy me - and I can't say that rant to them in person.