by: pubski

badged comments
kleinbl00  ·  link  ·  parent  ·  post: Pubski: September 20, 2017

    Welp. I'm in the hospital for a week or so. My transplanted kidney is experiencing some antibody mediated rejection. It's got some permanent damage, but with treatment and increased immune suppression, I should get a few more years of use out of it. Grateful for everyday since 2009. Grateful for my donor, and his family. Grateful for good healthcare. Grateful for my kiddos. Grateful for all the people who have supported me since my kidneys failed in 2007.

That's a buddy of mine, couple weeks ago. I've known him since I was three. He's center left. I'm center right. This was my seventh birthday.

He was my main rival through elementary school; the other smart kid. We were the twin towers of nerd-dom. Only he got distracted by other stuff and basically flaked out on school; I think he literally got perfect SAT scores but his academics blew. He now thinks it was the paint chips he ate as a baby because apparently he's got other hallmarks of lead exposure. Me? I started hanging out with the overpass kids and noped the fuck out of academics pretty hard so by the time anyone gave a fuck about achievement we were both too cynical to care.

    The out of pocket cost for these treatments will be approximately $5000. Worth it, but extremely difficult to cover, especially given the amount of unpaid leave from work he has had to take (2 weeks so far, plus at least another 10 days in the next two months for chemo). He's a good, hard-working man who hasn't been able to catch a break when it comes to his health.

We have lunch when I can find time; it's always striking to me because I show up wearing WTFever and he shows up in coveralls with his name on them. perfect SAT score. My life was no bed of roses but fuckin'A.

He's gonna die.

He's three months to the day younger than I am and he's gonna die. He's got two kids; one just graduated high school, I think, and the other is three or four years out. His wife got him all the way through recovery and then decided that she didn't want to be anyone's wife anymore. And his commute is miserable and he's gotta deal with shit like dialysis AGAIN.

I've done well in Ethereum. It's play money, too. And my instinct is to frickin' pay off his gofundme. I mean, there's a girl on the roster there a thousand miles away whose existence I'd forgotten until yesterday and she put $250 towards this guy she prolly hasn't seen in more than 20 years. I've had lunch with him like twice this year and I haven't been here for half of it. Maybe that'll buy him another couple years. But then I put my name on it and it hangs over both of us. Maybe I don't put my name on it and then it hangs over me. I don't know.

His parents are government employees with rippin' pensions but he doesn't talk to them anymore of course and besides, he's a grown-ass man. A grown-ass man whose sister is begging on the Internet to pay his medical expenses because we live in the most advanced Western democracy in the world with the best healthcare in the world and the best doctors in the world and we're crowdfunding someone's renal failure.

I make reality television for a living and my daughter's inhaler costs me $5. Her epipen costs me $5. Her ER visits? A whopping $70 ZOMG. I get hot towels when I fly and he finishes out the day with Gojo and growing up, his was the house the nicest one I'd been in and his mom was on the city council and their cars were always new and I hunted mice so I could sleep and here we are and I don't understand how we've created a society where a million little choices by a million little kids lead us to this place where I keep my bike tools in a Harry Winston bag and he's begging the Internet for another couple years on this earth, please.

So I'm home, and I slept in my own bed, and I started a class in taking apart watches and I've got a feature and a short to mix and what really fucks me up - and has been fucking me up - is my buddy.

I sent him a text saying we were setting up a standing lunch date, my treat, he picks the day of the week and the place. I haven't heard back.

America.

wasoxygen  ·  link  ·  parent  ·  post: Pubski: September 20, 2017x 2

I woke up at 4:30 Saturday morning prepared to do the hardest thing I've ever attempted.

It did not go as planned.

insomniasexx  ·  link  ·  parent  ·  post: Pubski: September 20, 2017

Waiting for numbness to set in

Today we are learning how big of liars mk and steve are regarding pain levels.

---

3 hours later

They aren't liars. It's not painful at all. Like actually maybe a 1 or 2 with the most pain the numbing needle. But it is something crazy happening to your body and you will react as you do in those situations. randomuser shakes. I sweat and get lightheaded. I haven't donated blood in forever because I'm so small that I am basically done the rest of the day.

It's short enough tho that even with anxiety and body reacting, it's over before it becomes unbearable.

I also had a really emotionally, long, long draining day yesterday, hadn't eaten anything before the procedure and, as always, am running on little sleep. I would not recommend doing it under those circumstances. Having a watered down Gatorade helped heaps tho.

---

The next day

Definitely sore. Sorta feels like if you slip on ice really, really hard except its not on your tailbone. But tender to the touch, sore and achy around, and some weird, unexpected pains if you move a certain way. I took 400mg advil mid day, with 250mg norco at 9am and 6pm. I am tiny + low tolerance though, my 200mg norco is likely your 500mg norco.

So basically, my recommendations on how to make it not as shitty as my experience:

- Do the procedure later in the day when sleeping for 15 hours won't hurt much.

- If you are a naturally anxious person, take half a valium beforehand.

- Let the doctor know UP FRONT that you are nervous and do not want to know the details or see the things they use. (Kevin apparently got a much more in depth description of the procedure than I did 😂)

- Get a good night's rest and make sure you have eaten a good breakfast (but probably a good while before the procedure because if I had thrown up, it would have been nice to throw up essentially nothing).

- Headphones + favorite music (I did this, as I always do for things like this, and it helps keep me calm). I actually posted this original photo as I was waiting for the numbing to work and texted my brother up until the first needle ("brb getting stem cells taken")

- Bring a watered-down yellow gatorade (watered-down because I find gatorade to be far too sugary and strong in general, but definitely too sugary after something like this).

- Drink a little bit of gatorade or suck on a sugar cube before the procedure to help get your blood sugar up.

- Remember to breath and that it's literally over in like 5 minutes, but prepare to spend at least an hour in the doctor's office between explanation, preparation, numbing, the actual procedure, and giving yourself 15 minutes to cool down / calm down afterwards.

- Ask the doctor for an extra gauze / tape for yourself for the next day. I'm sure most people have things at their house that would work but we're in the middle of moving so kevin got cheap-y hotel face circle + painters tape this morning